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The person-first and identity-first approaches to autism

This weeks post is by Marta Jorba (Pompeu Fabra University), Valentina Petrolini ( University of Bologna), and Bianca Cepollaro (University Vita-Salute San Raffaele). Presenting their recent paper open access ' Person-first and identity-first approaches to Autism: metaphysical and linguistic implications ' in  Synthese. Marta Jorba “I am not a ‘person with autism’. I am an autistic person”. Although these words were first written by Jim Sinclair almost 30 years ago, we still come across heated debates on social media and other public venues regarding the most appropriate way to address autistic people and people with other mental health diagnoses. Some, following some trends in disability studies, voice the concern that “I am not my disability” and prefer to say: “I am a person with autism”. Others, following more recent neurodivergent activism, proudly refer to themselves through claims such as “I am autistic”. The former is an example of a person-first approach while the latt...

The Problem of Essentialism in Autism and Gender Diversity Research

This post is by Ruby Hake (University of Birmingham), one of the authors of 'Autism and Gender', a chapter in a volume forthcoming for Routledge,  Contemporary Philosophy of Autism . The chapter offers an in-depth discussion of essentialism and argues that critical phenomenology is well placed to prevent this issue going forward. Ruby Hake Essentialism has been a problem in autism and gender diversity research from the beginning. For example, the biological-essentialist theory of the extreme male theory of autism ( Baron-Cohen 2002 ; 2012 ) has been used to explain the prevalence of autistic trans men ( Murphy et al. 2020 ; Nobili et al. 2018 ; Kung 2020 ). The theory cannot explain the prevalence of autistic trans women, however, and ignores the experiences of non-binary autistic people.  It has also been common in medical literature to argue that “symptoms” of autism, such as ‘black and white thinking’, ‘obsessions’, ‘developmental rigidity’ etc. can cause gender dyspho...

On Phenomenological Psychopathology

In this post, Susi Ferrarello , Francesca Brencio , Valeria Bizzari and Magnus Englander present a recent special issue of Frontiers in Psychology entitled: " Phenomenological Psychopathology: Who, What and How? An analysis of key figures, advancements and challenges ”.  Valeria Bizzari Phenomenology offers psychopathology a framework for understanding the patient’s lived experience without preconceptions, while psychopathology allows phenomenology to explore human plurality more deeply. In this special issue we aimed to gather papers focusing on the intersection of phenomenology and psychopathology, examining key concepts, contemporary challenges, and clinical applications.  Topics of interest include: the theoretical and practical advancements of phenomenological psychopathology the role of embodiment emotions like envy and melancholy in disorders  the use of phenomenological methodologies like interviews in clinical settings.  Key phenomenological concepts such ...

Responsible Agency and the Importance of Moral Audience

Today's post is by Anneli Jefferson and Katrina Sifferd. Anneli is a lecturer at Cardiff University who works in the philosophy of psychology, moral philosophy, and the intersection of the two. Katrina is Professor and Chair of Philosophy at Elmhurst College. In this post they discuss their recent paper in Ethical Theory and Moral Practice . Anneli Jefferson Accounts of responsibility often underestimate the importance of the social environment. Other people are vital to the development and maintenance of moral agency: As social beings, we calibrate our moral compass to our moral audience. When deciding whether it is acceptable to eat the last piece of cake, not to disclose extra earnings on a tax return or spank our children as a form of punishment, we do this with an eye to what’s considered acceptable by our social environment. The reactions of others highlight the existence and importance of moral norms by providing us with feedback, directly and indirectly. Katrina Sifferd On...

First-person perspectives and scientific inquiry of autism

Today’s post is by Sarah Arnaud (Clemson University) on her recent paper, " First-person perspectives and scientific inquiry of autism: towards an integrative approach " ( Synthese 2023). Sarah Arnaud In my paper, "First-person perspectives and scientific inquiry of autism: towards an integrative approach," published in Synthese , I analyse the essential role of first-person perspectives in enriching our comprehension of autism. This paper explores the interplay between scientific inquiry, activism, and the personal experiences of autistics, advocating for an approach that integrates insights from these varied sources. The paper begins by confronting widespread misconceptions about autism, focusing particularly on the debate concerning the impact of science and activism in shaping our collective understanding of autism. I analyze the perspectives of Ian Hacking and Kenneth Kendler, two influential figures in this discourse. Hacking argues for the predominance of a...

Addressing Autistic Mental Health from the First Person

Today's post is by Themistoklis Pantazakos and Gert-Jan Vanaken. Themistoklis (he/him) is an Assistant Professor in Philosophy of Psychiatry at The American College of Greece and an Honorary Research Fellow at University College London. He works on phenomenological psychiatry, focusing on treatment methods that make sense of the point of view of client users and their communities.  Gert-Jan (he/him) is a post-doctoral researcher at KU Leuven and the University of Antwerp. He works at the intersections of bioethics, disability studies and clinical autism research. His work focuses on developing neurodiversity-affirming autism care practices. Here, they argue that interventions for autism should address autistic mental health directly, and that a first-person approach is key for adapting psychotherapy to the needs of the autistic population. The full article is here , available open access. Themistoklis Pantazakos "[R]ight from the start, from the time someone came up with the ...

Philosophy of Psychiatry and Lived Experience (1)

This blog post is by Zsuzsanna Chappell. Zsuzsanna is an independent scholar and research associate at the Centre for the Philosophy of Natural and Social Sciences, London School of Economics. She currently writes on the social philosophy and ethics of mental illness, and the role of researchers with subject-relevant lived experience in the human sciences. Previously, she held academic positions at the London School of Economics and the University of Manchester and is the author of  Deliberative Democracy: A Critical Introduction , Palgrave 2012. Zsuzsanna reports from the third annual  Philosophy of Psychiatry and Lived Experience workshop . The workshop was held on 17-18 April 2023, online (hosted by the University of UmeÃ¥). The aim of these workshops has been to bring together  philosophers and philosophy-adjacent scholars who self-identify as having lived experience of mental disability / difference, and are also writing on these topics.  University of UmeÃ¥ Zsuzs...

Ecological-enactive account of autism spectrum disorder

Today's post is by Janko NeÅ¡ić at Institute of Social Sciences, on his recent paper " Ecological-enactive account of autism spectrum disorder " (Synthese, 2023). Janko NeÅ¡ić Autism (ASD) is a psychopathological condition characterized by persistent deficits in social interaction and communication, with restricted, repetitive patterns of behaviour and interests. It is still mostly understood from a cognitivist perspective (“mindblindness”). Phenomenological and enactive theories which view it as a lack of affective attunement, pre-reflective understanding and engagement and are all recently gaining traction. I think that an integrative account of autism is much needed at this point. It will bring all the diverse aspects of ASD together and do justice to the lived experience of autism. In my paper “Ecological-enactive account of autism spectrum disorder”, I develop a novel approach that connects two aspects of autism (two core types of deficits) found in the current DSM-5 ...

Masked, Alone, and in the Dark

Today's post is by Nuria Gardia, a Mental Health Master’s student at University of Birmingham with a newly discovered passion for Philosophy. Her interests lay in the intersection between philosophy and psychology to better understand how the mind “overcomes” trauma and the relationships between mind-body and self-world. Specifically, how trauma affects human experience and thus, human reality.  This is part of a series of posts by students of the Philosophy and Ethics of Mental Health and Wellbeing module at the Institute for Mental Health. They share some of their views on key topics discussed in the module. Nuria Gardia Autistic women navigate a world made by-and-for neurotypicals within a society that ignores their strengths ( Russell et al. 2019 ), and wrongfully denies their capacity as knowers ( Catala et al. 2021 ), by underdiagnosing them and excluding them from research ( D'Mello et al. 2022 ). Moreover, without a diagnosis, autistic women are wrongly deprived vital ...

Disturbances of Shared Intentionality in Schizophrenia and Autism

Today's post is by Alessandro Salice (University College Cork) and Mads Gram Henriksen (University of Copenhagen) on their new paper “ Disturbances of Shared Intentionality in Schizophrenia and Autism ” (published in 2021 in Frontiers in Psychiatry). Alessandro Salice In the past decades, shared intentionality (i.e., the capacity to share mental states like beliefs, intentions or emotions) has attracted intense attention in several disciplines. These include various theoretical disciplines (e.g., philosophy and game theory), empirical sciences of the mind (e.g., developmental psychology, social psychology, and cognitive sciences), and social sciences (e.g., anthropology, economics, and sociology). By now, the idea that shared intentionality pervasively characterizes human psychology and, therefore, human forms of social life has become fairly uncontroversial in the literature. However, the large body of insights secured by this burgeoning line of research has, so far, remained la...

Is Gender Dysphoria a Disorder?

In this post, Antonella Mazziotta, MSc student at the  Institute for Mental Health  at the University of Birmingham, discusses Gender Dysphoria. Gender Dysphoria is a topic not so well understood by scientists and society with this being reflected in the type of treatments and stigma around LGBTQ+ communities. Antonella's research interests include exploring Gender Dysphoria in childhood as well as language comprehension and production in Mental Health conditions. Antonella Mazziotta I had the opportunity to observe how dysphoria affects transgender people, especially children, and how society plays a vital role in the psychological outcomes of treatment for young people. This led to my interest in researching the pathological features of Gender Dysphoria. Do we believe that transgender children are aware of their inner identity or simply confused and therefore have a mental disorder? The DSM-IV called this condition ‘Gender Identity Disorder’ which was changed to ‘Gender Dysp...

The Power of Stories

Today's post is by Lisa Bortolotti (Birmingham) who is summarising the main argument in a recent paper co-authored with Anneli Jefferson (Cardiff) on the power of stories in debates about mental health, published in Diametros open access . Autobiographical stories do not merely offer insights into a person's experience but can be used as evidence for a controversial claim within a public debate. Although the function of stories is not typically to persuade your audience that something is the case, some engaging stories are likely to exercise a powerful influence on readers' thought and behaviour. One reason for their influence is that stories are vivid and concrete, more accessible than other forms of evidence which might require expertise or training to be fully understood or evaluated. Our main message in the paper is that, if stories are used as evidence and are influential in changing hearts and minds, then we should treat stories as we treat other forms of...

How to Feel Blue

Today's post is by Cheryl Wright. In 1998 I gave birth to a beautiful baby girl who was missing part of her corpus callosum. She was quirky and didn’t learn to speak in a typical manner. She had echolalia for years and would only simultaneously repeat what was being said in seemingly stereo timing to what she heard. I had to spend years teaching her to answer, “I’m fine, thank you.” to the question, “How are you?” I walked around with her, and for years pointed to everything blue, telling her it was blue; hoping she would get the concept of color. We had a blue and white checkered tile floor. I had every person that came in hop on the blue tiles and exclaim “BLUE!” At the age of seven, she finally got it. She said, “Mama, I walk blue!” and excitedly walked across the white tiles on the floor. She did understand blue and was able to demonstrate her understanding over the next week. The other colors came within the next six months. Cheryl Wright When she did start to shar...

Is Autism a Disease?

This post is by Christopher Mole , Chair of the programme in Cognitive Systems at the University of British Columbia . He is the author of Attention is Cognitive Unison (OUP, 2010), and The Unexplained Intellect (Routledge, 2016). This post outlines the argument of his recent article, “ Autism and ‘disease’: The semantics of an ill-posed question ” (Philosophical Psychology, 8(3): 557-571). Discussions of autism are often euphemistic: We speak of ‘service users’ rather than patients; and ‘atypicality’ rather than illness. By avoiding the rhetoric of disease we avoid the implication that the autistic point of view is a defective one, which would be gone from a world in which everything was operating correctly. Those who do use the vocabulary of disease might reject such motivations, while congratulating themselves on their straight-talking, no-nonsense approach. This would, I think, be a mistake. According to one tradition, the mistake would be that of applying a ‘medical mod...